We recognize the challenges in managing incontinence, whether for yourself or as a personal or professional caregiver. That is why we have listed a few organizations that may provide you with support or information to better manage your situation.
Specializes in supporting family caregivers to find the best senior living options for their loved ones. Provides recommendations for Assisted Living, Memory Care, Home Health Agencies & Private Caregivers. Additional resources for caregivers available online.
Caregiving.com offers support and insights for persons who care for an aging relative.
Home Care Assistance (866) 4-LIVEIN or (866) 454-8346.
Choose the type of home care you need with Home Care Assistance. They specialize in 24/7 live-in and hourly care as well as seniors with Alzheimer's, dementia and special needs.
ALZConnected by Alzheimer's Association
A social networking community for those living with Alzheimer's and their caregivers. This online support group includes tools and opportunities for sharing information, resources and solutions on message boards and group pages.
The Social Security and Disability Resource Center
The Social Security and Disability Resource Center (SSDRC.com) is an informational website written by a former claims examiner for the social security administration. It addresses many questions that people have about the application process, but have trouble finding clear answers to. Includes information on Medicaid and Medicare assistance and benefits.
National Association for Continence
National Association For Continence (NAFC) is a not-for-profit organization dedicated to improving the quality of life of people with incontinence. NAFC's purpose is to be the leading source of education, advocacy, and support to the public and to the health professional about the causes, prevention, diagnosis, treatments, and management solutions for incontinence.
Simon Foundation Online Support Community
The Simon Foundation for Continence is a non-profit 501(c)(3) corporation dedicated to bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. Simon Foundation has also started an online support community where people can anonymously go to find support and help from other people with incontinence. Please visit and share this information by visiting their community today.
Let's talk about Bowel Control
Bowel control problems, also called fecal incontinence, are common, manageable, often treatable and not always a part of aging. If you, someone you know, or someone you treat has a bowel control problem, this site helps to start the conversation as a first step toward management of the situation. Also included are steps that may help improve bowel control. This site is dedicated to the NIDDK Bowel Control Awareness Campaign, a service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), National Institutes of Health (NIH).
Education site with current info on different kinds of continence management products available in the US, how to select the most appropriate management products for your type of incontinence and information regarding insurance or other reimbursement programs for incontinence products.
Continence Product Advisor
Independent advice on continence products created by a collaboration between the International Consultation on Incontinence (ICI) and the International Continence Society (ICS). Designed to help either consumers or health care professionals assess which products may be right for the variety of incontinence management situations.
Us Too Prostate Cancer Support
A nonprofit organization that provides both support, advocacy and educational materials related to prostate cancer diagnosis, treatment options, and side effects. Resources for men and their families to make informed decisions about detection and treatment options.
Association for Pelvic Organ Prolapse Support (APOPS)
A nonprofit advocacy agency founded to generate awareness of pelvic organ prolapse (POP), to provide support and guidance to women navigating the physical, emotional, social, fitness, and employment impact of POP. Provides patient support via educational materials on their website, live events, and their online Facebook support forum.
CenterWatch Clinical Trial Listings
Information on current clinical trials related to urinary incontinence in the United States.